Ok, so a lot has been going on the last few weeks and I can't wait to share it all but I don't have the time to write about it right now. Look for another update soon.
A few weeks ago Rylee choked and stopped breathing briefly. I had no idea why. It was quick and enormously scary. A few days later she did it again and on Saturday once again it happened. I can deal with pretty much anything but I draw the line at not breathing. I think James and I handle things well but this is to much for me. We went back to St. Pete and saw Dr. W. We are not completely sure what's happening but she is no longer allowed to eat by mouth. This will be HELL for us. Rylee loves to eat, she knows when she eats, and where her food is. This breaks my heart into a millions pieces because up until this she was finally gaining weight, looking good, happy and walking. We will now go back to endless hours of crying. God help us get through this. Tomorrow I will call her neurologist. We need to know if she is having seizures or if this is all related to her digestive system. She will go back up there in the next few days for EKG, ECG and swallow study. I will post the results
as soon as I can.
On my last post I put down all the October birthdays and I forgot my Godfathers Uncle Frank so happy belated B'day, love you and sorry.
Aunt Pat , you rock and I'm so proud of you. You went from a duck paddling with swimmies to a soaring eagle. This could not be a better month for you to kick some BIG C's ass.
Love to you all,
9 years ago