Would I choose to not have had Rylee?

Shocking question, I know! When I first heard this question by another Mom who lost her child my immediate thought was HELL NO!!!!!!!!!!!!! This Mother was asked this question by a friend around the anniversary of her child's death. It struck me, because she didn't know the answer to it. Her answer was " I don't know" She said " I don't know what I would pick, I am grateful for the time with my son but, to live with this pain forever is so unbearable." She honestly didn't know if her life would have been better never having had her son. I will not judge this women, I know her pain. Her son passed away four years ago and yet, she still does not know, because her pain from his death is so deep. This was so profound for me. My answer is still HELL NO! but, I had to stop and think after she gave her reason for not knowing. She's right, the pain is so awful and it will never go away. For me, I would never trade, the laughs, smiles, tears, screams, hugs, kisses, touch, feel, smell. She was mine, and I would never give that up. I would however, do anything to have her back where she belongs.

3 Months plus

It has been a little over 3 months since that awful night. I was hesitant to write about it. Society believes my life has gone on. That 3 months is long enough. People forget, or don't know what to say. 3 months is nothing, 2o years will be nothing. The gaping hole will be there forever. To society I want to say FU!!! There is no limit to grief, especially when it's the lose of my child. The days are busy, very busy. That is the only way for me to survive right now. We go on for Drew, that is not a choice. On the outside I look whole, on the inside I am shattered into a gazillion pieces. I find it hard to write this because nothing compares to what Rylee lived everyday and how hard she fought to be with us for as long as she could. I love her, it's so plane and simple I just love her, want her, miss her.

Mother's Day is right around the corner. We have to go back to NY. Part of me is happy so I can be at the cemetery and the other part of me just wants to stay here and ignore it all. James and I have to pick out the headstone. How did we get here? A headstone for our baby. I just want to scream. Friday night we will put on our happy faces and help his brother celebrate his engagement. I am truly happy for him but, dread that weekend.

Mitochondrial Disease

Grief

Grief is a tidal wave that over takes you,smashes down upon you with unimaginable force,sweeps you up into its darkness,where you tumble and crash against unidentifiable surfaces,only to be thrown out on an unknown beach, bruised, reshaped...Grief will make a new person out of you,if it doesn't kill you in the making.