Sunday, November 2, 2008

Putting this off:(

Ok, so we are back home AGAIN, but, not for long. After seeing Rylee's neurologist and having her EKG they decided we could go home for the weekend. It was really important for us to be home for Halloween. Drew was still traumatized from last year when we were in the hospital and missed it. We have to go back this week until at least Friday. She will have to be hooked up to computer monitors for the an extended EEG. They really want to pin point why she stops breathing. I will keep everyone posted the best I can. Feel free to to text me. I will text back as soon as I can. Not looking forward to this. You all know how much she dreads this and we have been up there for the last month. This to shall pass:)
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1 comment:

Chrissie said...

Oh no... I am so sorry you have to be up there again! I am glad you all got to be home for Halloween, I felt the same way about being home for it for Katie too. The Drs at Sloan had originally scheduled the port surgery and first day of chemo for Halloween but I insisted on being home for Katie's sake. I hope you all had a fun Halloween. I have been thinking of you all and praying for you. Please keep us posted!

Love, Hugs & prayers..
Chrissie

November 2, 2008 at 8:35 AM

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I'm a bit of a daredevil

About Me

I'm a Mom of two wonderful children, Andrew(4) and Rylee(1). My husband and I are originally from NY and moved to FL 6 years ago. I love it here and won't move back but this is where I live my home will always be in NY. When I die someone better fly my ass back there to bury me. I love hanging outside with the kiddos, sports, working out and taking pictures.

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